• 101 in 1001

    40 Start learning to sing

    Number 40 on my list of 101 things to do in1001 days 🙂 Yesterday i had a singing lesson. How I came to find my teacher had a lovely bit of coincidence to it and it felt right. I put…

  • 101 in 1001,  M.E. diary

    101 things to do in 1001 days

    Ive started a list of 101 things to do in 1001 days – supported by this really great website: http://dayzeroproject.com/. The Day Zero Project was started in 2003 by a New Zealander called Michael Green. Im going to: A) Write…

  • M.E. diary

    Its been a while …

    Its been a while since i wrote in my blog. Its been a while since feeling ‘as well as i can’ meant i felt like I’d found myself again. Its been a while since i felt safe and happy. Its…

  • M.E. diary

    List of ME symptoms 25.06.2011

    This is more complete list of my symptoms that i generated on this website: Stonebird ME Symptoms Questionaire Its quite scary that i have the majority of them to some degree or another AND i dont think thats a full…

  • M.E. diary

    Ive got ME but im never ill?

    I found out something crazy today!!  And because i have been acting crazy for the past week, getting worse and worse as the days go on, and getting less and less sleep as the days go on, i may have…

  • M.E. diary

    Festival memories

    We went to the Acoustic Festival of Britain yesterday. Bruce was playing there the day before (Friday) with a band called Travis and Julie from the States. Jon went as his roadie and they managed to get 3 free tickets…

  • M.E. diary

    Ellesmere and stuff

    I don’t know if anyone reading this knows how heavy a 9 stone woman in a wheelchair is but its heavier than you would think and much heavier than 9 stone plus a wheelchair should be! Jon went off to…

  • M.E. diary

    10 steps forward, 4 back

    I know im still progressing and getting closer and closer to complete wellness but i think ive taken a couple of steps back and im disappointed but thinking ‘this is reality’ and that it seems, even more so since i…

  • M.E. diary

    Introspection

    Today Ive had to do a bit of introspection because Jon, my partner, is really annoyed with me and hasn’t spoken to me since yesterday afternoon. When im ill im still delusional – about how im behaving and whats going…

  • M.E. diary

    Mindfulness is an antidote to delusion!!

    Mindfulness is an antidote to delusion!! I love that sentence!! I’m thinking that a lot about my ME is (actually WAS) centered around delusion. My aim is to end up in a position where im subconsciously aware of everything that…