I found out something crazy today!!  And because i have been acting crazy for the past week, getting worse and worse as the days go on, and getting less and less sleep as the days go on, i may have…

We went to the Acoustic Festival of Britain yesterday. Bruce was playing there the day before (Friday) with a band called Travis and Julie from the States. Jon went as his roadie and they managed to get 3 free tickets…

I don’t know if anyone reading this knows how heavy a 9 stone woman in a wheelchair is but its heavier than you would think and much heavier than 9 stone plus a wheelchair should be! Jon went off to…

I know im still progressing and getting closer and closer to complete wellness but i think ive taken a couple of steps back and im disappointed but thinking ‘this is reality’ and that it seems, even more so since i…

Today Ive had to do a bit of introspection because Jon, my partner, is really annoyed with me and hasn’t spoken to me since yesterday afternoon. When im ill im still delusional – about how im behaving and whats going…

Mindfulness is an antidote to delusion!! I love that sentence!! I’m thinking that a lot about my ME is (actually WAS) centered around delusion. My aim is to end up in a position where im subconsciously aware of everything that…

If it hadn’t happened to me i wouldn’t believe how easily and quickly i am recovering from my ‘dip’ into ME. I remembered the list i wrote almost 3 months ago and have copied it (below) and added notes on…

This video ( http://www.youtube.com/watch?v=nabLrB7Ls9s) is a great explanation of what people with ME/CFS and other ‘invisible’ illnesses really need and explains what might possibly lead ‘one’ to believe that ‘one’ is not actually ill. I’m still feeling a bit bruised…

I’m sitting in bed writing this. Its 11am and I’ve managed to keep up with all the days/nights out all weekend by mainly doing just this. Jon and Bruce arrived at around 6.30pm on Thursday and by resting all day,…

I’m officially an IDIOT!!! I was feeling so good today that i thought id plant a few of the flowers i bought 3 days ago. I pottered about a bit in the garden and thought I’d just do a couple…