My symptoms – update 10/5/2011

If it hadn’t happened to me i wouldn’t believe how easily and quickly i am recovering from my ‘dip’ into ME. I remembered the list i wrote almost 3 months ago and have copied it (below) and added notes on how i feel today. Its still not a complete list because i didn’t go back and add to it as i happened upon symptom after symptom. I’ll try to write a post on why i think this has happened. I had a very positive appointment with Michelle, my Occupational Therapist, today but i cant remember clearly the exact wording for why we thought my recovery has been so fast so im going to try to check back with her before i do that.

My updated list of symptoms ( first listed on 23/02/2011):

Extreme fatigue (almost gone but i am feeling tired today)

Can only walk about 20 yds without feeling very ill (walked round Lulworth Cove, up onto the point and back again and felt tired but fine 🙂 )

Unable to walk up stairs without feeling ill (still makes me feel weak)

Unstable body temperature  ( much better but i think that’s mainly because I’m being ‘mindful’ of it)

Orthostatic intolerance – standing can me feel really ill (much better but still a slight problem for long periods)

Bad memory (can recall words much better and can pull up memories more clearly now)

Aching hips (much better from sports massage)

Burning hips if mattress isn’t soft and supporting (sleep on a pillow or fold round duvet if not at home and on a hard mattress)

Anxiety (almost gone)

Heart palpitations (gone)

Feeling sick (not so often but bad today)

Headaches (not so often, bad one yesterday but only lasted 1 day not 4)

Insomnia (gone but using Dosulepin elixir – lactose free)

Restless feet/legs (only if i drink alcohol)

IBS (only if i eat stuff i know makes me sick)

Severe lactose intolerance (still got)

Gluten intolerance (still got)

Deterioration in eye sight (getting worse)

Tight muscles in hips and upper legs causing severe pain (almost gone since having regular sports massages)

Flu like symptoms – skin painful to the touch, aching muscles (haven’t had for month or more)

Swollen glands in neck and under chin (still got – worse when tired)

Sore throat (still get but not as bad)

Acid reflux thing? (still get in certain circumstances)

Night terrors when falling asleep unless light is on (gone)

Highly sensitive to caffeine (still got)

Post nasal drip (yuk!) (Still got)

Jaw clenching/teeth grinding (still do both but they have lessened along with the stress and anxiety)

Difficulty in controlling emotions – cry easily (gone)

Brain fog (still get sometimes)

Sensitivity to loud music/bass/background music/too much going on in background (still got)